Those of you who follow this blog may read and think man this chick is bi-polar! I am up then I am down. I think that’s life. {Isn’t it?}I have to say that having Michael has been one of the biggest challenges and yet one of the most rewarding things I have ever done in my life. Never predictable, Never boring.
This week we went to Michael’s neurologist. He informed me that he does not need to see us any more unless Michael starts having seizures {Thank the good Lord we haven’t}.That there isn’t anything more he can do for Michael.
Hearing this from him brought me relief but it also brought a bit of sadness. My gut reaction was {woo hoo! And suddenly changed to But why?}
Relief because it is one less doctor bill for us, but, sadness because there is nothing he can do for our little Michael. Michael has what he has and there is no cure.
I have known this but I find myself sometimes holding onto the possibility of “a cure”. So when I hear things like this from his doctors I can’t help but mourn a little bit.
We can treat the symptoms of what is going on with Michael. Michael’s case is being sent over to Chris Walsh Labs at Harvard University where they study PVNH and other neurological migration defects to find out why they happen.
I can now hold onto the belief that one day they will know what causes this defect to happen and that somehow Michael was a piece of the puzzle in finding this out. {Who knows maybe one day we will read about Michael in some medical journal, maybe Michael when he grows up will be the one to figure out why this happens} You have no limits my baby boy.
So,that chapter is closed for now, a new one opens and along with it comes Michael’s MRI. I can not wait to get it so I can pop it in my PC and stare at his little brain in all its glory and wonder.
We look forward to these changes. We are embracing the moment. We are treating the symptoms and pushing forward to new things in science.
